About the council

Background

Covid-19 pandemic surfaced the deficiencies of healthcare systems on centralized and decentralized resource and data management. Hospitals in many cases are not equipped to create data sets for research purposes (technically and legally). This has an impact on harmonization, interoperability, unnecessary processing and data collection. Several countries lack of a digital national strategy for healthcare.

About Healthcare Data Innovation Council

The council’s goals

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Provide clarity by promoting, disseminating and sharing best practices on data usage for healthcare evolution
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Facilitate data-driven approaches in HC systems
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Unleash new initiatives on secondary use of data
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Accelerate harmonization and data-sharing standards
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Improve the usage of Artificial Intelligence and advanced analytics
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Define safeguards, opportunities and sustainability options

The Council’s 2023 Work

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The HDI Council will issue an Annex focused on healthcare in the era of AI, touching upon the implications of the emergence European Health Data Space framework and generative AI tools
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The HDI will expand the collection of best practices to showcase the value of data in healthcare

The Council’s 2022 REsults

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The HDI Council issued a white paper that reviews current best practices and legal frameworks for health data sharing contributing to the scientific, industrial and policy realms
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The HDI collected best practices on technology to promote use cases and best practices

Members

Members of the Council represent the many stakeholders of the healthcare industry:

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Health data should be seen as an essential resource for science and health innovation. I hope that through the HDI Council we can contribute in making the world realizing the huge opportunity to advance health science and healthcare if we create an ecosystem incentivizing data sharing.
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Meni Styliadou

Founder & Co-Lead at H2O

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The HDI Council aims to create thought-leadership in the strategic use of data, that is of value to policy-makers and decision makers at healthcare institutions, healthcare authorities and the health industry.

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Francis D’Silva

Director CGI Norge

Andrea Pescino

Co-Founder Stratejai

Stefano Sedola

Co-Founder Stratejai

“

We need algorethics: a new chapter in ethical reflection that wants to outline some ethical principles to be translated or implemented in software in a view to mitigate the unintended effects of algorithmic execution.

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Paolo Benanti

Ethics and Bioethics Professor at Pontificia Università Gregoriana

“

My expectation is to help support the bridging between data and health policies and the tangible work of HealthTech startups or on innovation AI/HealthTech solutions.

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Lucy Setian

Director of Digital Transformation at Novartis Foundation

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We need to find ways to break down the barriers to data sharing so that healthcare researchers can access the data they need to improve patient care, that respect fundamental rights and promote innovation.

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Gabriel Lopez Serrano

Attorney & Government Affairs Director at Microsoft

Julian Isla

Co-Founder & board member at Foundation 29

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This council should make recommendations for action regarding the use of data in the health sector, aimed at stakeholders, decision-makers and public policy makers. Recommendations that facilitate research, innovation and, above all, with the common good in mind.
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Senén Barro Ameneiro

Director CiTIUS-Research Center in Intelligent Technologies at Universidad de Santiago de Compostela

“

My expectation is to create a platform to accelerate the use of healthcare data for the benefit of the patient and society and stimulate innovation taking into account an ethical framework of data usage.

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Mitchell Silva

Co-Founder Esperity
& Patient Centrics

“
This platform represents the most important Health Data Governance principles, i.e. allowing to protect people in using valuable data, promote the value of the health data and prioritize the equity around the globe in using them. That’s what I like in bringing equitable governance of Health Data through this Council.
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Vincent Dupont

Co-Founder & CSMO at PatientSupportR

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I expect that with this Council we can contribute to the dialogue and joint concrete suggestions for advancing healthcare data innovation in a responsible manner.

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Heidi Beate Bentzen

Researcher at the
University of Oslo

Mário Dinis-Ribeiro

Head of Gastroenterology Dept. & Group Coordinator, Porto Comprehensive Cancer Centre & RISE

“
I commit myself to actively work to develop in citizens-at-large, and in healthcare professionals, what I call ‘BRAINWARE. BRAINWARE is the mindset needed to fully exploit all the possibilities offered by the access to Big Data using the new and future digitals tools, without feeling of being threatened by the digital transformation we are implementing.
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Paolo Parini

Senior Consultant and Director of Research & Development, Education and Innovation at Karolinska University Hospital
Professor at Karolinska Institutet

Organisations of our members